Here is a great tidbit shared by James Gideon (an adult living with an FASD): "Start with the assumption that all human beings want to please others
and to be successful - when there are problems, ask yourself what are
you doing that is setting this up and allowing it to happen - what is it
in this situation that makes it unlikely for us to be successful. I always think we are successful. You know what they are saying though.
I guess for me I look at my success as my own doing, not someone
elses, but I guess when I was younger this would have been an issue or
if I didn't have the skills, structure, routine that I have today, this
would be an issue in my adult life. Really cool tidbit."
I
love how this tidbit asks me to look at myself and evaluate myself to
see what I can do, what I can change to help the situation. What a good
outlook to have...rather than trying to point my finger at someone or
something to point blame...instead look inwardly at myself to see what
more I can do to help. I think this is a great outlook to have in all
aspects of life!
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Wednesday, March 26, 2014
Thursday, March 6, 2014
PREVENTION!!!
"If you want to see some success with your loved one with Fetal Alcohol,
stop trying to CHANGE their behavior(symptoms), instead put your focus
on PREVENTING the behavior(symptoms) from happening in the first place." Jeff Noble
try differently, not harder
"WHAT TRYING DIFFERENTLY CAN CHANGE"
"Trying differently means to expand your range of options and move from punishing behaviours to understanding them and to changing the environment and your expectations of the affected individual. It also means shifting from changing people's 'symptoms' to changing the way that you react. When parents, caregivers, and professionals learn about FASDs and are able to understand the causes of problem behaviours and what the underlying physical issue(s) might be, and act accordingly, secondary characteristics of FASDs such as meltdowns, irritability, frustration, anger, anxiety, withdrawal, shutting down, trouble at home/school, legal and mental health problems etc., can be prevented or decreased.
When the needs of individuals with an FASD are not met, these secondary characteristics can lead to secondary diagnoses such as reactive/attachment disorder, ADHD, Learning Disabilities, ODD, ADD, OCD, Conduct Disorder, sociopath, etc. Lack of understanding and inaccurate interpretation of problem behaviours lead to poor outcomes---diagnosis of FASDs is essential in preventing this.
When behaviours are understood, the interventions are supportive and frustrations are reduced. Trying differently alsop means that when something doesn't work, don't give up, don't try harder, try something different!
This is a long tidbit but this is going to go into my next little bit of tidbits but until tomorrow's tidbit,."
-James Gideon
"Trying differently means to expand your range of options and move from punishing behaviours to understanding them and to changing the environment and your expectations of the affected individual. It also means shifting from changing people's 'symptoms' to changing the way that you react. When parents, caregivers, and professionals learn about FASDs and are able to understand the causes of problem behaviours and what the underlying physical issue(s) might be, and act accordingly, secondary characteristics of FASDs such as meltdowns, irritability, frustration, anger, anxiety, withdrawal, shutting down, trouble at home/school, legal and mental health problems etc., can be prevented or decreased.
When the needs of individuals with an FASD are not met, these secondary characteristics can lead to secondary diagnoses such as reactive/attachment disorder, ADHD, Learning Disabilities, ODD, ADD, OCD, Conduct Disorder, sociopath, etc. Lack of understanding and inaccurate interpretation of problem behaviours lead to poor outcomes---diagnosis of FASDs is essential in preventing this.
When behaviours are understood, the interventions are supportive and frustrations are reduced. Trying differently alsop means that when something doesn't work, don't give up, don't try harder, try something different!
This is a long tidbit but this is going to go into my next little bit of tidbits but until tomorrow's tidbit,."
-James Gideon
With regards to behavior...
"With
regards to behavior: You child is never ever going to come and tell you
they need less stimulation in their life. The only way you will know
this is with their behavior. So instead of looking at it as something
to consequence and punish and modify - look at it as their only way to
fill a need for themselves. Look at the behavior and look UNDER it.
Find the need and fill it and I promise you
you will have less behavior and more peace in your home. It takes
years of doing this for your child before they start recognizing it and
removing themselves from overwhelming stimulus. They don't have the
capacity to do this at first! I am not saying no consequences though -
we are big believers in consequences when they are needed. Sometimes
though filling the need is consequence enough." New Hope Academy
Monday, January 6, 2014
Favorite quotes by Jeff Noble: FASD is Forever, Frustration is not.
"Just because people with Fetal Alcohol may know better, doesn't mean
they can do better. That's why external guidance and support is so key
to their success."
"If someone with an FASD is aggressive, it's usually because they are in over their heads. When you match your expectations with their actual ability, you'll see less aggression. You would be aggressive to, if you constantly could not understand things. Ever try putting something together from IKEA?"
"If someone with an FASD is aggressive, it's usually because they are in over their heads. When you match your expectations with their actual ability, you'll see less aggression. You would be aggressive to, if you constantly could not understand things. Ever try putting something together from IKEA?"
A New Year is a great time to try new things!
I was totally surprised that my son chose to leave Ozzy home today. It was 100% his choice. He
got some new animal friends for Ozzy on Christmas. I told him he
couldn't bring all of them to school, but told him that he could only
bring one if he would like. And he chose to leave Ozzy home...I could
tell it was hard for him, but I stayed neutral through the whole thing
as he made his choice.
Then, on the way to school he says: "A new year is good for trying new things. I'm trying something new by leaving Ozzy home." And I'm thinking, Wow! Where did that come from?
Over the break I did show him that I have two of his gray shirts that he likes to wear and so he didn't have to worry cause one of them should always be clean and ready for him to wear. Not sure if that made a difference or not. Not sure if it will even last.
But hey, at least today is a day that my son tried some new things, and I'll take that as progress! :)
Sunday, January 5, 2014
What do I do? Helpful Tips
**POSITIVE PRAISE; BUILD ON
SUCCESS**
Structure:
all kids raise hand before any comment
or question (enforced/re-do)
Consistent Routine/Predictable
simply keeping the order of doing
things consistent.
Supervision (emotional age)
teacher sit by him (doesn't like
sitting on the end)
a child that's a good example on the
other side of him
after class time, wait 'til adult picks him up
Anxiety
Prayer or read scripture in class/
talk or scripture in sharing time: always ask. If no, 'that's OK.
When you're ready for that, you'll do it.'
Concrete
he takes things very literal. Doesn't
get abstract or sarcasm
Learns by Repetition and Very Visual
(can remember things best when related
to something visual)
good visual memory (poor working
memory/auditory
“Listening tool”:
-rope puzzle
-clay
*Tone
*Body Language
*less words
Things that help him de-escalate:
quiet, quiet voice, eye contact,
confidence (positive praise, build on success), clear simple
directives, quiet melodic words, gentle tone of voice, music
Things that help him escalate:
poking, noise, too much talking, chaos
in class, frustration, anxiety, communicating from a distance with no
eye contact, complex directives, too many directives at once,
ultimatums, raised voice, shaking finger, harsh tone of voice,
threats.
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