http://www.fascets.org/conceptualfoundation.html
FASCETS Conceptual Foundation: A Neurobehavioral Construct for Interventions
For Children and Adults with Fetal Alcohol Spectrum Disorders (FASD)
Fetal Alcohol Syndrome (FAS) has been referred to as the leading cause
of mental retardation and developmental disabilities in the Western
world for over fifteen years, a significant statement since
underidentification of this population is still common. National and
state studies have found that the numbers of women who drink during
pregnancy continue to be high (CDC, 1997, Governor’s Task Force, MN,
1998, Oregon Benchmarks, 1998; the National Survey on Drug Use and
Health found that although overall rates of use appear to be dropping,
girls start using alcohol/drugs at higher rates than boys, 2006.)
The medical diagnostic criteria for FAS were established in 1973. Since
then, thousands of research studies have explored the mechanisms of
damage to fetuses caused by alcohol and other drugs. Increasingly
sophisticated studies have clarified the nature and duration of these
effects. It appears that of the drugs studied to date, e.g., cocaine
and methamphetamine, prenatal exposure to alcohol causes the greatest
damage to the developing brain and central nervous system.
People with Fetal Alcohol Syndrome, and particularly those with Fetal
Alcohol Spectrum Disorders (FASD), are referred to as having an
“invisible physical handicapping condition,” since there are few
external physical characteristics of prenatal alcohol exposure. In
these cases, the only symptoms of the underlying neurological
disability are behaviors.
Although underdiagnosis of FASD is common, people with FASD are often
assigned multiple DSM IV diagnoses, including Attention Deficit
Disorder, Hyperactivity, Asperger’s Disorder, Learning Disorder,
Reactive Attachment Disorder, Conduct Disorder, Emotionally Disturbed,
Oppositional Defiant Disorder, and others.
Diagnoses on Axis I in the DSM IV organize constellations of
presenting behaviors. Many capture primary neurobehavioral and
secondary defensive behavioral symptoms of FASD. However, interventions
generated on the basis of Axis I diagnoses address behavioral symptoms.
The etiology of behaviors -- effects of brain dysfunction on behaviors
-- is typically not recognized or incorporated into techniques. For
example, recent research has found some medicinal and behavioral
interventions for Attention Deficit Disorder (ADD) to be ineffective
when applied to those with FASD/ ADD, since underlying neurocognitive
characteristics of FASD and ADD appear to be significantly different
(Coles, 1997).
Linking research findings with behaviors: A gap exists between the
research on FASD, brain research, and behavioral literature.
Historically, the idea of brain dysfunction, or the “organicity”
concept, failed to gain general acceptance. This has been attributed in
part to the complexity, subtlety and variability of effects and the
overlap between neuro- and psycho-pathology. There is a vast body of
medical literature on the physical characteristics of brain
dysfunction, and an equally huge body of literature on behaviors. These
two spheres have yet to merge.
Bridging this gap and linking the idea of brain dysfunction
with behaviors creates an alternative explanatory theoretical framework
that shifts thinking from learning theory into a neurobehavioral
paradigm for understanding the meaning of behaviors. This paradigm
redefines the meaning of behaviors and supports development of a more
holistic and integrated method for systematically considering all
facets of the person – physical, developmental, and cognitive. Linking
brain dysfunction with behaviors is consistent with research on FASD.
The resulting neurobehavioral construct is informed by research on FASD
and is the basis for the FASCETS model. This model was developed on the
basis of clinical work and research findings. It provides an organized
approach for rethinking the meaning of behaviors, and generating
specific, relevant techniques. This structure manages the complexity
and diversity of neurobehavioral characteristics.
The challenge in creating this model has been to accurately
translate research findings into practical information and training
material that is intellectually accessible for a wide range of
educational levels, and that has relevance for all disciplines.
The logic of interventions based on this model reads as follows: If
children, adolescents and adults with FASD have by definition a
physical disability – brain damage from prenatal exposure to
alcohol/drugs -- and if the primary presenting symptoms of this
disability are learning and other behavioral characteristics, then it
follows that they would benefit from appropriate environmental
accommodations. This is the same principle that is applied for people
with more obvious physical handicapping conditions.
Presenting behavioral characteristics of people with observable
physical challenges, e.g., paralysis, are different from behavioral
characteristics associated with people with brain dysfunction, e.g.,
behavioral symptoms of sensory overload, memory problems, or
dysmaturity. The obviousness of this statement is intentional:
Behaviors that reflect underlying neuropathology are rarely framed in a
neurological perspective and are instead viewed through a moral lens
and seen as a function of volition, or psychopathology.
Although presenting behaviors indicating the presence of other physical
disabilities are different, the principles for interventions for both
kinds of physically-based conditions are the same. As self-evident as
this seems, the application of this principle represents a nearly
paradoxical way of thinking, understanding, and defining points of
intervention.
People with physical challenges are provided with environmental
accommodations, the range of which reflects the variability of
disabling conditions. The more obvious the disability, the clearer the
nature of the accommodations, e.g., where there is paralysis,
wheelchairs and ramps are provided. When presenting symptoms of a
disability are behavioral, identification of accommodations is more
elusive, e.g., modifying timelines, providing alternative instructional
strategies, or recognizing developmental rather than chronological age.
However, just as outcomes are improved for others with recognized
disabilities whose needs have been addressed, preliminary clinical
findings of improved outcomes for children, families and professionals
based on this approach suggest the efficacy of this model for those
with FASD.
A question of fit: FASD as a social problem is emerging in a
world still dominated by learning theory and a behavioral paradigm.
This paradigm, with associated assumptions about brain function and
behaviors, forms the basis for understanding and intervening in
behavioral symptoms. These assumptions remain unexplored for their
relevance for people with neurobehavioral disorders. FASD challenges
the theory to expand to include the neurobehavioral dimension, since
interventions based on the principles of learning theory are often
incompatible with the needs and abilities of people with FASD.
The poor fit between behavioral techniques and FASD may be
indicated by findings from the Secondary Disabilities study published
by Dr. Streissguth (1996). For example, this study found mental health
problems to be the most common secondary disability associated with
FASD. Secondary disabilities are defined as defensive behavioral
characteristics and are not intrinsic to FASD. These are challenging
behaviors that develop over time as a function of a chronic poor fit
between the person and his or her environment.
The most important finding of Dr. Streissguth’s study may be implicit.
Following diagnosis for FAS and FAE, subjects continued to receive
standard interventions, e.g., mental health and school services, and
traditional parenting techniques. Most of these are
cognitive-behavioral interventions based on learning theory and are
variations on a theme of one: Identify problem behaviors and target
these for change.
The research findings of high frequencies of secondary problems
occurred in spite of these interventions. Rather than suggest the
inevitability of deterioration and associated secondary challenging
behavioral characteristics, these findings appear to indicate the
ineffectiveness of otherwise good traditional, learning-theory based
techniques.
Interventions that focus on changing presenting behaviors that are
symptoms of a disability seem to yield frustration and behavioral
deterioration. The net effect is like inadvertently “beating the blind
child who refuses to read the blackboard.” Paradoxically, when
behaviors are understood differently as cues, or symptoms, of an
underlying disability and environments are adapted to provide a good
fit with the needs and strengths of the individual, many challenging
behaviors resolve. Including the key variable of brain dysfunction and
understanding behaviors from a neurobehavioral perspective provides a
way to shift from seeing the child as being the problem, to
understanding the child as having a problem, a physical disability.
The apparent limits of the learning theory paradigm may contribute to
the paucity of interventive research on FASD. There has long been
speculation that few interventive studies on FASD exist. This was
confirmed by researchers in Canada who searched the literature on FASD
and published a State of the Evidence Review (Premji, 2004). Of 16,913
references, only seven interventive studies were located. One was the
three-year FASD interventive study conducted by FASCETS and funded by
the State of Oregon that tested this neurobehavioral approach for
working with children and adolescents with FASD. The project was an
educational, community-based, multisystem collaboration. The goal was
to increase understanding of behaviors from a neurobehavioral
perspective, and generate congruent accommodations across domains that
create a good fit for children with FASD in all environments. The
hypothesis was that behavioral improvements would be a function of
adults understanding children differently and providing accommodations
in all settings. Statistically significant findings of reduced
secondary behavioral characteristics in children and improvements in
parents and professionals suggest the potential viability of this
construct (Malbin 2002).
Innovativeness: The definition of a problem determines the
intervention, or, beliefs dictate interventions (Holloway, in lecture,
1989). If a behavior is viewed as a function of willfulness, or choice,
interventions typically focus on changing the behavior. If a behavior
is recognized as having a neurological basis, then the target for
intervention includes the environment. Recognizing brain dysfunction as
the etiology for behaviors redefines perceptions, which then redefines
the nature of the problem and clearly redefines the nature of
interventions.
The shift in focus is from the child to the child-in-the-environment,
from trying harder using increasingly controlling and coercive
measures, to trying differently and paradoxically achieving reductions
in secondary behaviors through environmental accommodations. This is
like writing the IEP for the environment.
The simple idea of reframing perceptions to see behaviors as
symptoms, rather than as the thing to be changed, is new. The
simplicity of the statement belies the intellectual shift this entails.
Preliminary findings from the three-year study mentioned above that
explored the soundness of this hypothesis clearly suggest that as
caregivers and professionals understand behaviors differently, their
perceptions change, options expand, and secondary symptoms in children
are reduced.
The innovativeness of this model is found in its redefinition of
problems and solutions in a manner consistent with research findings.
The study based on this model tested an approach rather than a
technique. Statistically significant findings of improvements suggest
the importance of further research on this approach.
Implementation: Accommodations in all environments are provided for
people with other physical disorders. Accordingly, accommodations in
all systems of care are also necessary for people with FASD. An
educated community-based multidisciplinary continuum of care
facilitates sustained implementation of accommodations.
The process of implementation is enhanced by recognizing personal,
historical, cultural, intellectual, institutional, and fiscal issues
and associated with this issue. The complexity of these dynamics
suggests the importance of a comprehensive and thoughtful approach, a
reasonable timeline, and adequate support for achieving sustained
multisystems implementation. Support for implementation required by
this approach is decremental, meaning there is less need for external
supports over time. This is an empowerment model in the best sense of
the term, proactive rather than reactive. It supports youth and adults
with FASD, parents, professionals and their systems.
Conclusion: The goals of this approach are to increase understanding of
FASD as a primary brain-based physical disability with behavioral
symptoms, to increase effectiveness and efficiency of practice and
program design, and to contribute to the long range goals of community
healing and prevention of FASD.
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Friday, May 24, 2013
Understanding FASD
http://www.fascets.org/info.html
UNDERSTANDING FASD:
FASD is often
termed an "invisible physical handicapping condition." The
effects of prenatal alcohol
and other drug exposure on the developing brain are the most
debilitating aspects of this
condition. These effects are invisible. The only indicators of this
physical disability are found in
learning and other behavioral characteristics.
Parents and professionals often find standard techniques are ineffective. Many people experience increasing frustration over time when childrens' behaviors are unresponsive to traditional interventions. Until recently, there has been little information linking the "organicity," or neurological differences associated with FASD, with behaviors.
Information
linking brain function with behaviors increases understanding, reduces
frustration,
and contributes to successful outcomes. Knowledge about FASD and
organicity provides a
way to shift perceptions: Children may be understood as having
a problem rather than being the problem.
As
a result, rethinking and reframing interpretations of behaviors
contributes to developing
effective and appropriate strategies, "trying differently rather than
trying harder." Successful
strategies support children, and contribute to the well-being of
parents and professionals.
FASCETS
supports the development of a family-centered, community-based,
multidisciplinary continuum of care. This collaborative design has been
found to be effective in enhancing communication among parents
and professionals for their mutual benefit.
PRIMARY CHARACTERISTICS OF FASD;
The following neurodevelopmental characteristics are commonly associated with FASD. No one or two is necessarily diagnostically significant; many overlap characteristics of other diagnoses, e.g. ADD/ADHD, learning disabilities, and others. Typical primary characteristics in children, adolescents, and adults include:
COMMON STRENGTHS:
Many people with FASD have strengths which mask their cognitive challenges.
In the absence of identification, people with FASD often experience chronic frustration. Over time, patterns of defensive behaviors commonly develop. These characteristics are believed to be preventable with appropriate supports.
UNDERSTANDING FASD:
Parents and professionals often find standard techniques are ineffective. Many people experience increasing frustration over time when childrens' behaviors are unresponsive to traditional interventions. Until recently, there has been little information linking the "organicity," or neurological differences associated with FASD, with behaviors.
PRIMARY CHARACTERISTICS OF FASD;
The following neurodevelopmental characteristics are commonly associated with FASD. No one or two is necessarily diagnostically significant; many overlap characteristics of other diagnoses, e.g. ADD/ADHD, learning disabilities, and others. Typical primary characteristics in children, adolescents, and adults include:
- Memory problems
- Difficulty storing and retrieving information
- Inconsistent performance ("on" and "off") days
- Impulsivity, distractibility, disorganization
- Ability to repeat instructions, but inability to put them into action ("talk the talk but don't walk the walk")
- Difficulty with abstractions, such as math, money management, time concepts
- Cognitive processing deficits (may think more slowly)
- Slow auditory pace (may only understand every third word of normally paced conversation)
- Developmental lags (may act younger than chronological age)
- Inability to predict outcomes or understand consequences
COMMON STRENGTHS:
Many people with FASD have strengths which mask their cognitive challenges.
- Highly verbal
- Bright in some areas
- Artistic, musical, mechanical
- Athletic
- Friendly, outgoing, affectionate
- Determined, persistent
- Willing
- Helpful
- Generous
- Good with younger children
In the absence of identification, people with FASD often experience chronic frustration. Over time, patterns of defensive behaviors commonly develop. These characteristics are believed to be preventable with appropriate supports.
- Fatigue, tantrums
- Irritability, frustration, anger, aggression
- Fear, anxiety, avoidance, withdrawal
- Shut down, lying, running away
- Trouble at home, school, and community
- Legal trouble
- Drug / Alcohol abuse
- Mental health problems (depression, self injury, suicidal tendencies)
Wednesday, May 22, 2013
Intervention: Tackling the Room!
Today I forced myself to "tackle" my son's room. Yes, it most definitely needed some attention. I felt there was just too much stuff in his room. I kept putting off doing it 'cause I didn't know where I was going to put all the stuff, but I decided to leave that excuse in the hallway...literally...Now, all the stuff is in the hallway, waiting for a new home.
I've cleaned out and organized my son's room before, but this time was different. This time I literally took everything out of his room and I ONLY PUT BACK WHAT I FELT WAS NECESSARY.
HERE'S WHAT STAYED:
HIS TIRE SWING STAYED. A couple years ago we had an Occupational Therapist recommend we put a swing in his room, and so we did. It has been a very good thing for my son and will definitely stay in his room.
THE MONKEY BARS are permanent and of course, stayed. The Occupational Therapist also recommended we put monkey bars in his room, and gratefully, I have a very handy husband who had the monkey bars built and up and going in just a couple days. The monkey bars have also been a very good thing.
STUFFED ANIMALS IN HIS CLOSET: I completely emptied his closet and then decided to put only stuffed animals in his closet. He has a lot of stuffed animals and they are all very important to him. They fit perfectly on the shelves in his closet. He doesn't have closet doors so it feels more like they are just on shelves in his room.
HIS BED: Because of the space the monkey bars and swing take up in his room, his bed is simply a mattress on the floor. The mattress fit nicely in front of the closet and that way his animals are all by him while he sleeps, just like he likes it.
ONE BOOKCASE (3 shelves): I kept one bookcase in his room. Top shelf: a few legos, water bottles, lotion and hand sanitizers (Again, things that are important to him). Middle shelf: special things: picture, special clay animals he made, puzzle star, etc. Bottom shelf: books.
BIG PILLOW/BEAN BAG: I put a big pillow and bean bag by his book shelf so he can sit there and read if he wants.
HOOKS ON THE BACK OF HIS DOOR: On the back of his door there are hooks. On the top hooks I put his backpack, special bag, and water bottle carrier. On the bottom hooks, I put his cub scout shirt and his jacket.
PLASTIC DRAWERS FOR CLOTHES: I put all his clothes in small plastic drawers. Each drawer is labeled with "pants", "shirts", "socks", etc. Everything has a place. I lined his shoes up next to the plastic drawers.
AND THAT'S IT...THAT'S ALL THAT'S IN HIS ROOM.
THE RESULT: Seeing how I did this without consulting with my son, I was a little nervous about his reaction, especially since all his toys, stuff, etc. were just in the hallway. BUT he didn't even care about the toys he passed in the hallway. HE LOVED HIS ROOM THE WAY I HAD ORGANIZED IT! His face lit up when he walked in and he sat on his swing and whispered to himself: "This is way better. This is way better." And it's not like his room was messy before...we kept it clean most of the time...but I just think it was TOO MUCH STUFF. I think he will like it much better this way. We will give it the "2 week try" and assess! Now I just have to find a place for his legos, blocks, toys etc...cause those are good for him too...but just not good in his room.
INTERVENTION: THE POINT OF THIS INTERVENTION IS TO ASSESS THE ENVIRONMENT, PRIMARILY HIS ROOM, TO SEE IF IT IS TOO MUCH OR TOO OVERSTIMULATING....AND THEN CHANGE IT TO NOT BE OVERSTIMULATING.
I've cleaned out and organized my son's room before, but this time was different. This time I literally took everything out of his room and I ONLY PUT BACK WHAT I FELT WAS NECESSARY.
HERE'S WHAT STAYED:
HIS TIRE SWING STAYED. A couple years ago we had an Occupational Therapist recommend we put a swing in his room, and so we did. It has been a very good thing for my son and will definitely stay in his room.
THE MONKEY BARS are permanent and of course, stayed. The Occupational Therapist also recommended we put monkey bars in his room, and gratefully, I have a very handy husband who had the monkey bars built and up and going in just a couple days. The monkey bars have also been a very good thing.
STUFFED ANIMALS IN HIS CLOSET: I completely emptied his closet and then decided to put only stuffed animals in his closet. He has a lot of stuffed animals and they are all very important to him. They fit perfectly on the shelves in his closet. He doesn't have closet doors so it feels more like they are just on shelves in his room.
HIS BED: Because of the space the monkey bars and swing take up in his room, his bed is simply a mattress on the floor. The mattress fit nicely in front of the closet and that way his animals are all by him while he sleeps, just like he likes it.
ONE BOOKCASE (3 shelves): I kept one bookcase in his room. Top shelf: a few legos, water bottles, lotion and hand sanitizers (Again, things that are important to him). Middle shelf: special things: picture, special clay animals he made, puzzle star, etc. Bottom shelf: books.
BIG PILLOW/BEAN BAG: I put a big pillow and bean bag by his book shelf so he can sit there and read if he wants.
HOOKS ON THE BACK OF HIS DOOR: On the back of his door there are hooks. On the top hooks I put his backpack, special bag, and water bottle carrier. On the bottom hooks, I put his cub scout shirt and his jacket.
PLASTIC DRAWERS FOR CLOTHES: I put all his clothes in small plastic drawers. Each drawer is labeled with "pants", "shirts", "socks", etc. Everything has a place. I lined his shoes up next to the plastic drawers.
AND THAT'S IT...THAT'S ALL THAT'S IN HIS ROOM.
THE RESULT: Seeing how I did this without consulting with my son, I was a little nervous about his reaction, especially since all his toys, stuff, etc. were just in the hallway. BUT he didn't even care about the toys he passed in the hallway. HE LOVED HIS ROOM THE WAY I HAD ORGANIZED IT! His face lit up when he walked in and he sat on his swing and whispered to himself: "This is way better. This is way better." And it's not like his room was messy before...we kept it clean most of the time...but I just think it was TOO MUCH STUFF. I think he will like it much better this way. We will give it the "2 week try" and assess! Now I just have to find a place for his legos, blocks, toys etc...cause those are good for him too...but just not good in his room.
INTERVENTION: THE POINT OF THIS INTERVENTION IS TO ASSESS THE ENVIRONMENT, PRIMARILY HIS ROOM, TO SEE IF IT IS TOO MUCH OR TOO OVERSTIMULATING....AND THEN CHANGE IT TO NOT BE OVERSTIMULATING.
Wednesday, May 15, 2013
Updated Afternoon Schedule
It has been 2 weeks since I began the intervention with the "Consistent Schedule of a Routine", posted on May 1st, 2013. I have found that the morning and evening schedule has been helpful and made a difference the majority of the time. I feel the afternoon schedule needs to be updated. I sat down with my son and made a more specific afternoon schedule, and it is posted here:
Monday.:
1. Shower
2. Job: Clean upstairs family room.
3. Wii
4. Read books
Tuesday:
1. Shower
2. Job: Clean upstairs family room.
3. T.V.
4. Piano
Wednesday:
1. No Shower
2. Webelo Scouts
3. Clean and Vacuum upstairs family room
4. Free time choice
Thursday:
1. Shower
2. Job: Clean upstairs family room.
3 Computer
4. Legos
Friday:
1. Shower
2. Job: Clean upstairs family room.
3. Bike
4. Movie
Monday.:
1. Shower
2. Job: Clean upstairs family room.
3. Wii
4. Read books
Tuesday:
1. Shower
2. Job: Clean upstairs family room.
3. T.V.
4. Piano
Wednesday:
1. No Shower
2. Webelo Scouts
3. Clean and Vacuum upstairs family room
4. Free time choice
Thursday:
1. Shower
2. Job: Clean upstairs family room.
3 Computer
4. Legos
Friday:
1. Shower
2. Job: Clean upstairs family room.
3. Bike
4. Movie
Thursday, May 9, 2013
Don't try harder, try differently!
As a general rule, when working with persons with an FASD, if a
situation is not working, STOP, OBSERVE, and ASK CONCRETE QUESTIONS (not
abstract questions). "Why?" is a very abstract question and will not
bring good results with a person with an FASD. Good, concrete questions
to ask are as follows: "What was hard for you?" "What would help?"
"What were you frustrated about?"
DON'T TRY HARDER, TRY DIFFERENTLY!
"If a child is told 1,000 times and still doesn't understand, then it is not the child who is the slow learner." -Walter Barbee
DON'T TRY HARDER, TRY DIFFERENTLY!
"If a child is told 1,000 times and still doesn't understand, then it is not the child who is the slow learner." -Walter Barbee
8 essentials for success with FASD
1. CONCRETE
not abstract
2. CONSISTENCY
and be predictable
3. REPITITION
this is very helpful
4. ROUTINE
keep a strict schedule...even to the point of leaving early to keep the child's bedtime
5. SIMPLICITY
do not overstimulate
6. SPECIFIC
say exactly what you mean
7. STRUCTURE
this is the glue that helps the world make sense to persons with an FASD
8. SUPERVISION
keep the child with an FASD and others safe
-Deb Evensen and Jan Lutke 1997 "8 magic keys"
not abstract
2. CONSISTENCY
and be predictable
3. REPITITION
this is very helpful
4. ROUTINE
keep a strict schedule...even to the point of leaving early to keep the child's bedtime
5. SIMPLICITY
do not overstimulate
6. SPECIFIC
say exactly what you mean
7. STRUCTURE
this is the glue that helps the world make sense to persons with an FASD
8. SUPERVISION
keep the child with an FASD and others safe
-Deb Evensen and Jan Lutke 1997 "8 magic keys"
F.A.S.D. BASICS
Alcohol is a teratogen, which means it crosses the placenta barrier and causes damage to the brain. The surgeon general says that there is NO AMOUNT OF SAFE ALCOHOL DURING PREGNANCY. There are 3 reasons why woman may drink when they are pregnant: 1) addiction to drinking 2) she didn't know she was pregnant 3) mis-informed: she didn't know that alcohol CAN cause harm to the unborn baby.
It is NOT SAFE to drink during ANY part of the pregnancy. 50,000 brain cells form each second during pregnancy. Drinking alcohol in moderation is NOT SAFE. Red wine is NOT SAFE. Alcohol is alcohol and any form of alcohol can harm the unborn baby. Four factors affect how the alcohol will affect the unborn baby: 1. Timing of exposure to alcohol (1st Trimester is most damaging, BUT remember, alcohol can be damaging in ALL trimesters) 2. Amount of alcohol (Binge drinking is more likely to cause more harm) 3. diet and metabolism of mother 4. resiliency of the fetus: we each have a different resiliency (more likely to get sick, etc.) Exposure to alcohol in pregnancy is going to affect each individual differently and in varying degrees. However, this fact remains: alcohol can take potential away.
Alcohol exposure to the unborn baby can effect/damage the CORPUS CALLOSUM, which affects memory and communication. It can also effect other areas of the brain. It often greatly effects the FRONTAL LOBES, which affects impulsive behavior, decision making, judgement/problem solving, generalize learning, attention (being "tuned in"), understanding social cues.
Persons with an FASD may also struggle with attention deficit, hyperactivity, memory deficit, difficulty with abstract, inability to manage money, difficulty with the passage time, lack of control over emotions, and difficulty understanding cause and effect (consequences).
Examples of some of these behaviors:
1) Impulsive behaviors/Consequences: A child with an FASD is continually stealing. (impulsive behavior) The parent imposes consequences; however, the child continues to steal. Finally, the parent imposes a harsher consequence: "if you steal again, we will throw away your blanket" (a blanket that the child is greatly attached to and loves). The child steals again, the blanket is thrown away; however, the child steals again the very next day. Consequences do not help the child change behavior in the long term. Short term consequences are more effective. The same child is asked (after stealing), "Who do I need to give this back to?" and the child is told if he/she answers right away, there will be no consequence. The child answers right away. The difference here is that the consequence is immediate/short-term. There is no set formula for how a child with an FASD will respond to consequences. The point is that it is difficult for persons with an FASD to understand cause and effect and consequences are typically ineffective in changing their behaviors.
2) Time and Money: Typically, a person with an FASD can spend his/her paycheck immediately...and do not have a good concept of saving money and paying bills. A person with an FASD will need an "external brain": someone to help him/her manage money and time.
3) Generalizing: A child with an FASD sees an ad for a free cel phone. It is explained to the child that the little * by the "free cel phone" explains terms of use, which cost money. The child understand what is said; however, the next day the child sees a new ad for a "free cel phone" and is unable to generalize that what was taught applies to all "free cel phones".
4) Memory: A mother works for hours with her child, practicing times tables. By the end of the practicing, the child is able to answer several answers correctly. The very next day they work on the same times tables, and the child is unable to answer them correctly. This is just one example of how memory can be affected.
FASD usually becomes more noticeable as the child reaches about the age of 4th grade. In school, from Kindergarten to 2nd/3rd grade most of the skills learned are concrete. At 3rd or 4th grade the curriculum becomes more abstract, and the child's social inadequacies are more noticeable by his/her peers. In general, a person with an FASD's emotional age is about 1/2 of his/her chronological age. So a 10 year old, appears to be about 5 years old emotionally, and this becomes more noticeable to peers as the child grows older.
FASD is an invisible, hidden disability because the child appears normal physically; however, the brain's ability to function has been impaired. The person is expected to perform as a normal child would because he/she appears normal; however, the person with an FASD does not have the same brain capacity/ability to function as a normal child does.
--these are my notes/thoughts that I have written after listening to a webex given by Barb Clark, through the MOFAS organization (mofas.org)
It is NOT SAFE to drink during ANY part of the pregnancy. 50,000 brain cells form each second during pregnancy. Drinking alcohol in moderation is NOT SAFE. Red wine is NOT SAFE. Alcohol is alcohol and any form of alcohol can harm the unborn baby. Four factors affect how the alcohol will affect the unborn baby: 1. Timing of exposure to alcohol (1st Trimester is most damaging, BUT remember, alcohol can be damaging in ALL trimesters) 2. Amount of alcohol (Binge drinking is more likely to cause more harm) 3. diet and metabolism of mother 4. resiliency of the fetus: we each have a different resiliency (more likely to get sick, etc.) Exposure to alcohol in pregnancy is going to affect each individual differently and in varying degrees. However, this fact remains: alcohol can take potential away.
Alcohol exposure to the unborn baby can effect/damage the CORPUS CALLOSUM, which affects memory and communication. It can also effect other areas of the brain. It often greatly effects the FRONTAL LOBES, which affects impulsive behavior, decision making, judgement/problem solving, generalize learning, attention (being "tuned in"), understanding social cues.
Persons with an FASD may also struggle with attention deficit, hyperactivity, memory deficit, difficulty with abstract, inability to manage money, difficulty with the passage time, lack of control over emotions, and difficulty understanding cause and effect (consequences).
Examples of some of these behaviors:
1) Impulsive behaviors/Consequences: A child with an FASD is continually stealing. (impulsive behavior) The parent imposes consequences; however, the child continues to steal. Finally, the parent imposes a harsher consequence: "if you steal again, we will throw away your blanket" (a blanket that the child is greatly attached to and loves). The child steals again, the blanket is thrown away; however, the child steals again the very next day. Consequences do not help the child change behavior in the long term. Short term consequences are more effective. The same child is asked (after stealing), "Who do I need to give this back to?" and the child is told if he/she answers right away, there will be no consequence. The child answers right away. The difference here is that the consequence is immediate/short-term. There is no set formula for how a child with an FASD will respond to consequences. The point is that it is difficult for persons with an FASD to understand cause and effect and consequences are typically ineffective in changing their behaviors.
2) Time and Money: Typically, a person with an FASD can spend his/her paycheck immediately...and do not have a good concept of saving money and paying bills. A person with an FASD will need an "external brain": someone to help him/her manage money and time.
3) Generalizing: A child with an FASD sees an ad for a free cel phone. It is explained to the child that the little * by the "free cel phone" explains terms of use, which cost money. The child understand what is said; however, the next day the child sees a new ad for a "free cel phone" and is unable to generalize that what was taught applies to all "free cel phones".
4) Memory: A mother works for hours with her child, practicing times tables. By the end of the practicing, the child is able to answer several answers correctly. The very next day they work on the same times tables, and the child is unable to answer them correctly. This is just one example of how memory can be affected.
FASD usually becomes more noticeable as the child reaches about the age of 4th grade. In school, from Kindergarten to 2nd/3rd grade most of the skills learned are concrete. At 3rd or 4th grade the curriculum becomes more abstract, and the child's social inadequacies are more noticeable by his/her peers. In general, a person with an FASD's emotional age is about 1/2 of his/her chronological age. So a 10 year old, appears to be about 5 years old emotionally, and this becomes more noticeable to peers as the child grows older.
FASD is an invisible, hidden disability because the child appears normal physically; however, the brain's ability to function has been impaired. The person is expected to perform as a normal child would because he/she appears normal; however, the person with an FASD does not have the same brain capacity/ability to function as a normal child does.
--these are my notes/thoughts that I have written after listening to a webex given by Barb Clark, through the MOFAS organization (mofas.org)
Monday, May 6, 2013
Friday, May 3, 2013
Resources
Resources:
While I'm not able to add a direct link to these websites yet, I still wanted to post these resources/websites for a reference:
SAMHSA FASD Center for Excellence: fasdcenter.samhsa.gov
Centers for Disease Control and Prevention FAS Prevention Team: www.cdc.gov/ncbddd/fas
National Institute on Alcohol Abuse and Alcoholism (NIAAA): www.niaaa.nih.gov/
National Organization on Fetal Alcohol Syndrome (NOFAS): www.nofas.org
NOFAS Resource Directory: www.nofas.org/resource/directory.aspx
National Clearinghouse for Alcohol and Drug Information (NCADI): ncadi.samhsa.gov
For more information about FASDs, including topics such as diagnosis and treatment, please visit http://www.fascenter.samhsa.gov.
While I'm not able to add a direct link to these websites yet, I still wanted to post these resources/websites for a reference:
SAMHSA FASD Center for Excellence: fasdcenter.samhsa.gov
Centers for Disease Control and Prevention FAS Prevention Team: www.cdc.gov/ncbddd/fas
National Institute on Alcohol Abuse and Alcoholism (NIAAA): www.niaaa.nih.gov/
National Organization on Fetal Alcohol Syndrome (NOFAS): www.nofas.org
NOFAS Resource Directory: www.nofas.org/resource/directory.aspx
National Clearinghouse for Alcohol and Drug Information (NCADI): ncadi.samhsa.gov
For more information about FASDs, including topics such as diagnosis and treatment, please visit http://www.fascenter.samhsa.gov.
Paradigm Shift
What is needed to adequately address FASDs is a paradigm shift in how we think:
“We must move from viewing the individual as failing if s/he does not do well in a program to viewing the program as not providing what the individual needs in order to succeed.”
—Dubovsky, 2000
“We must move from viewing the individual as failing if s/he does not do well in a program to viewing the program as not providing what the individual needs in order to succeed.”
—Dubovsky, 2000
Wednesday, May 1, 2013
Intervention: JUST GO WITH IT
When a person with an FASD wants something/wants to do something a certain way, go with it, IF it is not going to harm anyone
and is giving you the outcome you want. Get in their world...quit trying to make them "fit" into yours.
Persons with an FASD have enough to deal with already...Go with what they want when you are able to...it makes for a happier journey.
FLEXIBILITY helps with this.
My husband told my son it was time to shower. It was one of those days when my son did not want to shower. My son finally said, "ok fine then, just buzz (cut) my hair and then I'll shower". My husband said OK...he buzzed his hair and then my son showered.
Just go with it....and....Be Flexible.
Persons with an FASD have enough to deal with already...Go with what they want when you are able to...it makes for a happier journey.
FLEXIBILITY helps with this.
My husband told my son it was time to shower. It was one of those days when my son did not want to shower. My son finally said, "ok fine then, just buzz (cut) my hair and then I'll shower". My husband said OK...he buzzed his hair and then my son showered.
Just go with it....and....Be Flexible.
Intervention: consistent SCHEDULE of a ROUTINE and BE PREDICTABLE
The first intervention I'm putting in place is the consistent SCHEDULE OF A ROUTINE...going right along with this is to BE PREDICTABLE. For example, I will give my son a 5 min. warning before something changes. ie. "you have 5 min. left to do that activity, then it will be time to eat dinner"
I typed up 3 schedules for my son: morning, afternoon, and bedtime. I put spaces between each step so that it's not visually overstimulating. They hang on the wall next to his light switch in his room.
*Items in colored writing are revisions: things I added and/or changed as we tried this intervention.
MORNING:
1. Make Bed.
2. Say Prayers.
3. Get Dressed. Put shoes and socks by your lunchbox.
*On Sunday put shoes and socks by your scriptures*
4. Eat Breakfast.
5. Brush Teeth.
6. Piano with mom.
7. Book of Mormon story with mom.
8. School work.
AFTERNOON (after school):
1. Shower.
2. Activity(s) (ask Mom)
3. Take out Trash.
4. Dinner.
5. Sweep floor.
6. Family Prayers.
UPDATED AFTERNOON SCHEDULE: (5/15/13)
Monday.:
1. Shower
2. Job: Clean upstairs family room.
3. Wii
4. Read books
Tuesday:
1. Shower
2. Job: Clean upstairs family room.
3. T.V.
4. Piano
Wednesday:
1. No Shower
2. Webelo Scouts
3. Clean and Vacuum upstairs family room
4. Free choice
Thursday:
1. Shower
2. Job: Clean upstairs family room.
3 Computer
4. Legos
Friday:
1. Shower
2. Job: Clean upstairs family room.
3. Bike
4. Movie
BEDTIME:
1. Put Pajamas on.
2. Put Clothes Away.
3. Lay out clothes, shoes, socks for next day.
4. Brush Teeth.
5. Say Prayers.
6. Read Books.
7. Turn lights out.
8. Go to sleep.
I typed up 3 schedules for my son: morning, afternoon, and bedtime. I put spaces between each step so that it's not visually overstimulating. They hang on the wall next to his light switch in his room.
*Items in colored writing are revisions: things I added and/or changed as we tried this intervention.
MORNING:
1. Make Bed.
2. Say Prayers.
3. Get Dressed. Put shoes and socks by your lunchbox.
*On Sunday put shoes and socks by your scriptures*
4. Eat Breakfast.
5. Brush Teeth.
6. Piano with mom.
7. Book of Mormon story with mom.
8. School work.
AFTERNOON (after school):
1. Shower.
2. Activity(s) (ask Mom)
3. Take out Trash.
4. Dinner.
5. Sweep floor.
6. Family Prayers.
UPDATED AFTERNOON SCHEDULE: (5/15/13)
Monday.:
1. Shower
2. Job: Clean upstairs family room.
3. Wii
4. Read books
Tuesday:
1. Shower
2. Job: Clean upstairs family room.
3. T.V.
4. Piano
Wednesday:
1. No Shower
2. Webelo Scouts
3. Clean and Vacuum upstairs family room
4. Free choice
Thursday:
1. Shower
2. Job: Clean upstairs family room.
3 Computer
4. Legos
Friday:
1. Shower
2. Job: Clean upstairs family room.
3. Bike
4. Movie
BEDTIME:
1. Put Pajamas on.
2. Put Clothes Away.
3. Lay out clothes, shoes, socks for next day.
4. Brush Teeth.
5. Say Prayers.
6. Read Books.
7. Turn lights out.
8. Go to sleep.
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